Never Surrender to the Brick Walls

If you mention the phrase “hitting brick walls” among parents with Special Needs Children, you are going to see nods of understanding. We understand exactly what you mean. Though for us there are two definitions of this phrase.

Definition 1

The first definition is the “brick walls” we run into with schools, insurance, and obtaining the right treatment for our kids. Ramming our entire bodies into these walls hoping they will give even a little. Hoping it will reveal even just a small glimmer of the other side that will guide us to the next step. When those glimmers come, time after time there is yet another wall in place. So we batter ourselves against them until we are bone weary.

First trying to get the right answers we need to be able to access services/care for our children. Misinformation is rife in this process. It is a maze filled with those brick walls that often times will not yield. Every once in a while a ladder is provided to climb over, but those are rare. Each individual system has its own walls, its own maze, and its own type of brick. Just in case you should become savvy in how to take down that particular type. Each state, school district, and medical department specializes in their own unique maze of Hell. (And I don’t use that word lightly.)

 

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Definition Two

The second definition for families like ours of “hitting a brick wall”, has to do with our children. We hit brick walls with their treatments, their behavior. With medications no longer working or not being an option, physical and mental limitations. How do we help them? Science hasn’t gone far enough yet in so many areas. We are left out in the cold randomly picking a new brick wall to try.

The first definition in a lot of ways causes the most frequent headaches (or Traumatic Brain Injury due to all that contact with brick). The second causes the most heartache. Sometimes it means our children’s very lives are at stake, their quality of life or our ability to care for them.

We just want someone somewhere to put a gate into some of these walls. So the maze isn’t hitting our whole body against quite so many brick walls making it more accessible for families. They are already struggling and dealing with SO MUCH. We need to find a way to help them through to the help they need.

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