Alaska

Advocacy Is Imperative for a Special Needs Parent

Advocacy Is Imperative for a Special Needs Parent

What does it take to awaken the advocacy mama bear in me?

When we lived in Alaska and Washington State, I spent a lot of time advocating for those with special needs. I testified before a state committee, appeared on television, picketed the state disability offices, provided help to families with Individual Education plans (IEPs), and formed a group that worked on helping those with disabilities be heard and get what they needed, and getting a special needs PTA up and running. We moved to Mississippi and 6 months later COVID started. I haven’t been involved with advocacy here at all. It wasn’t that there weren’t things that needed advocating for. It was more that with going back to school, working, and the shutdown of COVID I didn’t have the time or things were so influx due to COVID no one knew what was going on. No one knew how IDEA and FAPE applied in a COVID world.

Why did the advocacy mama bear awaken again?

Image by dianakuehn30010 from Pixabay

A school saying that despite my son finally passing pre-algebra after taking it 5 times, it will not count as a math credit. Because the class was not passed while my son was in 9th grade, they are saying that the state is it cannot count as a math credit. It will count instead as an elective credit. What this means is that my son is starting from scratch on his math credits and in his final semester of school he will have to take 2 math classes at once, and take a harder math class than he would need to graduate because he has no math credits currently. This is my child who has dyscalculia- a math disability.

Dear state legislatures and educators-

  • It shouldn’t matter which grade a child passes a math class as long as they pass it.
Calleen Petersen

Mississippi ranks at the bottom on many measures of education. Why are we making it harder for children to graduate for nonsensical reasons? Have you heard of IDEA? How about IEPs? Do you need a refresher course?

Image by Gerd Altmann from Pixabay

This is what it took to wake me up. In social work, advocacy is part of the job on a macro and micro level. I will not stop until this policy is changed, not just for my son, but for everyone else. And then I may turn my efforts to their “graduation track” policy that has been struck down in other states.

Mississippi, you don’t know what you just unleashed.

Earthquake Preparedness: What You Need to Know

” It is just the three of us in the office in the quiet, cold, morning. I go back to my emails and a few moments later, there is a low rumble, I look up, thinking it must be one of facility’s trucks rumbling by. The sound increases. Suddenly there is a loud BOOM! as the ground begins to shake and roll. I am nauseous from the rolling of the ground as I stumble towards my door.”
Read more…

A Legacy of Southern Manners or Something Else?

A Legacy of Southern Manners or Something Else?

“Years ago when we were trying to move out of Alaska, I half facetiously had my eye on The South. I had small children who were starting to learn what back talk is and experimenting with its use. Oh to be in The South where manners were taught, not just by me, but everyone they came in contact with!”
Read more…

Medical Issues And Our Survival

Medical Issues And Our Survival

“Five years ago we moved from Alaska to Washington. Prior to doing so, our child, whose primary diagnosis is Autism, had spent time in a Children’s Psychiatric Hospital for 5 weeks.”
Read more. . .

Managing Children’s Expectations At Christmas

Managing Children’s Expectations At Christmas

“I just know that I want my children to grow up to be adults who seek to help and love other people. To realize that having “things” isn’t everything. So each year I’ll keep working and trying to help them understand. “

It’s Cold And Yucky Out: What Can You Do With Kids?

It’s Cold And Yucky Out: What Can You Do With Kids?

“We lived for 7 years in Alaska. Our kids were ages three and one and a half when we moved there. It was cold and dark during those winters and that first year we were in a very small apartment. What to do when you’re stuck inside with two small children?” Read more. . .

Fireweed- At Last I Can Admire You

Fireweed- At Last I Can Admire You

It’s a flower I had never heard of until moving to Alaska. You can make yummy Fireweed Jelly with it. But what it’s most well known for in Alaska is a forecaster of winter coming. Read more…

Camping with Kids

Camping with Kids

I LOVE camping. I love the smell of a wood fire. It is one of my favorite smells.
Add roasted marshmallows to it and I am one happy person! I love sleeping in a tent, and the unique smells and sounds that you can experience there. It’s something of an adventure and I’ve always loved adventures. Read more…

My Journey With Anxiety

My Journey With Anxiety

“Not everyone is as lucky as I am and has their attacks manifest in all different ways. But know that this is a possibility. Things don’t always go by the book.” Read more…

The State of Long-Term Medical Care For Children in the U.S.

The State of Long-Term Medical Care For Children in the U.S.

“Where does that leave parents? Where does that leave vulnerable children? This needs to be part of the discussions being had about Medicaid. This needs to be part of the discussions that we as American’s have about helping our neighbors when they can’t do it alone. It shouldn’t be this hard to help a child. Especially when all the research shows that early intervention is the most successful.”