Autism Moms

We Have Trauma Too

We Have Trauma Too

A friend’s child is in the hospital right now due to a heart condition. As I visited for a moment with her, I was brought back to all those times my child was in the hospital. How hard that is. There are so many maybes, and what if’s, and no guarantees. A mother’s worst nightmare.

This is a nightmare those of us in the special needs community are all too familiar with.

Mental health practitioners are recognizing more and more how medical trauma affects the children being treated. But what I don’t hear about is the vicarious medical trauma that parents suffer, and a light needs to be shown on it. Because it is real, and it is important.

An acquaintance recently posted about how she was having issues with her pregnancy and was being kept at the hospital for a while. But it was bringing back so many memories, triggering so much trauma from when her three year old was being treated for cancer and then later died.

In my work as a social work case manager, I remind parents daily about self care. I remind them how important it is to take care of themselves, I recommend that they seek therapy and healing.

So I’m going to remind you today too. The trauma you have experienced as you have shepherded your children through these illnesses and disabilities? It’s real. Don’t question it. Invest the time in yourself and your care. Seek out therapy, a listening year of a friend. Practice good self care. Your children depend on it.

But even more importantly, so do you.

MASH and Autism

I have fond memories of laying on the living room floor watching MASH with my Dad when I was little. My husband spent 23 years in the military so he’s a big MASH fan. My kids surprisingly love it too. But what does MASH have to do with Autism?

My husband found a book written by the actor who plays Father Mulcahey in the MASH series. It turns out, he and his wife raised a son with Autism. The book details their struggles to find answers and help for him.

If you follow me on Goodreads- or even here for that matter, you’ll know I read a lot. Last year’s number of books read was 108. But there is one narrow genre of books I almost never read any more.

Books about Autism.

When our son first received his diagnoses I over indulged, and then the life that was being described within the pages of the books became all too real. I just couldn’t.

My husband encouraged me to read the book Mixed Blessings by William (Father Mulchey) and Barbara Christopher. So I read it.

Their journey started 50 years ago. I found the book both fascinating and horrifying as I read what they tried, what was recommended by professionals at the time, and how much dedication they put into trying to help their son.

But overwhelmingly? I found it unbelievably depressing to find that things haven’t changed all that much. That many of the things they struggled with- IEP’s, doctors, therapies, shear exhaustion- we are still dealing with these exact same issues 40 and 50 years later. I can’t tell you how heartbreaking this is to realize.

This is why I don’t read books on living with Autism.

My Greatest Hope and My Greatest Fear

My Greatest Hope and My Greatest Fear

“Two and one half years.

That’s the amount of time I have left until my son turns 18. Every time I think about it, terror grips my heart.”

Read more…

Holding a Job and Being a Parent of Special Needs Child is Often Incompatible

Holding a Job and Being a Parent of Special Needs Child is Often Incompatible

“The first story I’ll tell you is that of a single mom. She recently discovered that her daughter had serious medical issues. All of her sick leave and vacation now go to time off for medical appointments. She has enough for this year, but next year, she will likely burn through that quickly. Vacations will now be a thing of the past while she desperately tries to balance working, being a mom, and the care of her sick child. She is lucky. She has worked with the company she works for, for over a year and therefore is eligible for the government program of FMLA (Family Medical Leave Act). This act protects her job and ensures she gets time off- though unpaid, to care for her child.”
Read more…

Feeling like a fraud

Feeling like a fraud

“And so I sit here, trying to understand that because my life is not filled with trauma causing events, and has really calmed down in a lot of ways, that it makes me feel like a fraud. As mental health is my chosen field to study and eventually work in… This makes me want to dig into this further.”
Read more…

Is It Exhaustion?

Is It Exhaustion?

“Some days we can rejoice at the step forward our child has made. And we do. But some days we have to give ourselves grace, realizing that what we are doing is HARD. And right now, I just want to avoid anymore hard. I need hard not to exist for a while. And I think that is where the ignoring, the procrastination, the indifference to it all is coming from. I’m human. This is my life. And it’s hard.” Read more. . .

Camping with Kids

Camping with Kids

I LOVE camping. I love the smell of a wood fire. It is one of my favorite smells.
Add roasted marshmallows to it and I am one happy person! I love sleeping in a tent, and the unique smells and sounds that you can experience there. It’s something of an adventure and I’ve always loved adventures. Read more…

Birthday Parties and Autism

Birthday Parties and Autism

“For years I have dreaded my kids birthdays. Birthdays are supposed to be fun and exciting days. Autism has taken that from us. Instead, they have been filled with dread for me every time each of my kid’s birthdays approaches.” Read more…

Dear Fellow Church Members- How You Can Help

Dear Fellow Church Members- How You Can Help

“There are people in your congregation that are a little bit different. They have some special needs.  What you may not know is that many times those special needs can hamper the individual and their family’s ability to come and participate in church, feel comfortable, or even make it difficult to feel that God is near. These are some ways that you can help these families.”