Conduct Disorder

Our Changing World: Special Needs Children

Our Changing World: Special Needs Children

“I don’t have any magic advice. For those of you dealing with five. Just know that those of us at 13? We’re here for you. We’ll help you through.”
Read more. . .

Dear Medical Professionals

Dear Medical Professionals

“Yes, it’s almost like we are asking you to be God. But you don’t have all the answers, and can’t preform all the miracles.”
Read more. . .

Dear Insurance Company~ A Letter From A Special Needs Family

Dear Insurance Company~ A Letter From A Special Needs Family

“I know we are not your ideal of a customer. You would rather not have us enrolled on your rolls.

Yours is a business that is for-profit. You want to make money. But despite our paying you hundreds of dollars every year, and then paying thousands of dollars out of pocket every year, our family puts you in the red every year.”
Read more. . .

Am I to Blame For My Child’s Diagnosis?

Am I to Blame For My Child’s Diagnosis?

“Am I to blame for my child’s diagnosis?”
This is the question parents with Special Needs ask themselves, pretty much without exception. There is A LOT of guilt that accompanies having a special needs child. I have seen it in both with Mothers and Fathers. At some point in our parenting journey, no matter the circumstances, we wonder or blame ourselves.
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Homework and kids with Special Needs

Homework and kids with Special Needs

School is back in session and the dreaded “Homework” has begun. There is not much in my house that brings tears faster (both from me and my children). So I’m going to let you in on a little secret. Your kids don’t have to do it. . . At least in Elementary School. Or rather that is my opinion and the opinion of a lot of teachers I have spoken to. Let me explain.

In our home, we have learners with disabilities. Dyslexia, Autism, ADHD, Dyscalculia to name just a few.

When my kids were younger, we spent almost every day immediately after school going to therapy. We would get home just in time for dinner and bed. There was no time for them to do homework, let alone time to play and be children.

If we had a rare afternoon off  I wasn’t about to make them do homework instead of taking the time to play and have fun. I did have them read for 20-30 mins a day either in the car to and from therapy or in bed at night before they fell asleep.

We have added into my son’s IEP at various times that no homework or extremely limited homework will be issued. It is a legitimate modification for students in their IEP’s.

Do kids sometimes need extra practice? Absolutely. But, to quote a Special Education teacher I know, “If they didn’t get it at school, they likely aren’t going to get it with 30 minutes of homework either.” They are going to need direct instruction. And I don’t know about you, but when it comes to Common Core Math? I can’t help them anyway.

Is it going to be a positive thing for your children or a negative one? Are they behind in a subject or on target? Is the amount of homework reasonable for your child’s age and personality? These are all things you should take into consideration.

So do yourself and your kids a favor and weigh the benefits of homework at your house.

Child With Special Needs? Finding Help Isn’t Easy

Child With Special Needs? Finding Help Isn’t Easy

We had just been trapped for 45 minutes in the parent’s lounge of the Pediatric Psychiatric Ward of the hospital while our child hit, kicked, screamed and cried at us from the other side of the door. It took multiple staff members to remove our child to his room so that we could exit safely. We needed to attend the mandatory safety meeting to help us begin the process of bringing our child back home.

Holding back tears, and shaking like a leaf, we went to the meeting. We sat through discussions of what to do with sharp objects, weapons and medications at your home before your child can return home. None of this applied to us. It might one day, but for now, this was not our situation.

We had been told, “Bring up your safety issues during the meeting.” And so we did.

Our child doesn’t try to hurt us with objects and doesn’t try to hurt himself. Instead, it is his body he uses. To kick you, hit you, bite you, anything that can aid in the mission to get that coveted object. Something with a screen or more food. When my Husband is home he can protect us. I can no longer just pick my child up and put him in his room when he has a meltdown and starts acting out.

Our safety plan for my daughter and I to get into a room and lock ourselves in until he calms down. The problem is that because he is now bigger and stronger, he punches holes in the doors. It won’t be much longer until he can physically break the door down. Unlike the Children’s Psychiatric Ward, our house isn’t made of safety glass and industrial doors.

Our question for the professionals was, “What do we do to protect ourselves?” The Therapist’s reply-

“That’s out of my area of expertise.”

That’s all that she said. That is where she left our question. That is where she left us. We just wanted help.

As a parent, this leaves me in a terrifying position. How do I protect one child and myself, yet still providing boundaries and other needs for my other child?

When they released our child, one of the documents they sent home stated that they hadn’t seen any of the behavior issues that had led to him being admitted. Did I just imagine those 45 minutes being trapped in the parent’s lounge with my Husband? I must have imagined all those kicks to the door and screams. Did I imagine the staff’s instruction to not come out until they had a plan in place for our son to be safe that he would agree to? Knowing that just an hour earlier he had an earlier meltdown which also required multiple staff to remove him from my body as he desperately tried to get to my phone?

My child is not always like this. He is not always trying to hurt us. He can be loving and kind.

These are the situations and dilemmas that parents of special needs children face. This is what our lives can be like. We each have our own individual situations. We each have our own issues. But we are in need of help that is often just not available to us.

*This post was originally written about 6 months ago. I have spread out the posts on Psychiatric Wards so that you don’t get them all at once.

If you would like to read more about these types of experiences you can do so here and here to start with.

Dear Fellow Church Members- How You Can Help

Dear Fellow Church Members- How You Can Help

“There are people in your congregation that are a little bit different. They have some special needs.  What you may not know is that many times those special needs can hamper the individual and their family’s ability to come and participate in church, feel comfortable, or even make it difficult to feel that God is near. These are some ways that you can help these families.”