Disability

Advocacy Is Imperative for a Special Needs Parent

Advocacy Is Imperative for a Special Needs Parent

What does it take to awaken the advocacy mama bear in me?

When we lived in Alaska and Washington State, I spent a lot of time advocating for those with special needs. I testified before a state committee, appeared on television, picketed the state disability offices, provided help to families with Individual Education plans (IEPs), and formed a group that worked on helping those with disabilities be heard and get what they needed, and getting a special needs PTA up and running. We moved to Mississippi and 6 months later COVID started. I haven’t been involved with advocacy here at all. It wasn’t that there weren’t things that needed advocating for. It was more that with going back to school, working, and the shutdown of COVID I didn’t have the time or things were so influx due to COVID no one knew what was going on. No one knew how IDEA and FAPE applied in a COVID world.

Why did the advocacy mama bear awaken again?

Image by dianakuehn30010 from Pixabay

A school saying that despite my son finally passing pre-algebra after taking it 5 times, it will not count as a math credit. Because the class was not passed while my son was in 9th grade, they are saying that the state is it cannot count as a math credit. It will count instead as an elective credit. What this means is that my son is starting from scratch on his math credits and in his final semester of school he will have to take 2 math classes at once, and take a harder math class than he would need to graduate because he has no math credits currently. This is my child who has dyscalculia- a math disability.

Dear state legislatures and educators-

  • It shouldn’t matter which grade a child passes a math class as long as they pass it.
Calleen Petersen

Mississippi ranks at the bottom on many measures of education. Why are we making it harder for children to graduate for nonsensical reasons? Have you heard of IDEA? How about IEPs? Do you need a refresher course?

Image by Gerd Altmann from Pixabay

This is what it took to wake me up. In social work, advocacy is part of the job on a macro and micro level. I will not stop until this policy is changed, not just for my son, but for everyone else. And then I may turn my efforts to their “graduation track” policy that has been struck down in other states.

Mississippi, you don’t know what you just unleashed.

Being The Sibling of a Special Needs Child is Hard

Being The Sibling of a Special Needs Child is Hard

“Being a sibling of a child with a disability or special needs is hard.

For a child, it can be embarrassing.  Their sibling does things no one else does. The sibling may not understand the finer points of socialization, causing embarrassing situations. ”
Read more . . .

Teenage Years and Special Needs

Teenage Years and Special Needs

“So many times over the years, I have had parents of older disabled children tell me that it will get better. That it is likely our son would pull out of the behaviors that have been rampant for years, that we would be able to find solutions to medical problems. He would be able to eventually live on his own and support himself. ”
Read more. . .

God Doesn’t Always Send Healing

God Doesn’t Always Send Healing

“The lame walk, the blind saw. The leper was healed, and the dead lived again. The New Testament is full of Christ’s miracles of healing. We read of great faith of many with and without names that are given.
Something the Bible doesn’t say?
It doesn’t say that every single person with an ailment was healed in Judea. It doesn’t say that every single person who had faith to be healed was healed. “
Read more. . .

Special Needs and Disability Blogs I Love To Follow

Special Needs and Disability Blogs I Love To Follow

My Facebook feed is FILLED with blogs and writers that I love. Reading their words, laughing with them, feeling heard and like someone gets me or has put words to something I have struggled to put words to. They are people who are down to earth and are going to give it to you honestly. Read more. . .