Washington State

Advocacy Is Imperative for a Special Needs Parent

Advocacy Is Imperative for a Special Needs Parent

What does it take to awaken the advocacy mama bear in me?

When we lived in Alaska and Washington State, I spent a lot of time advocating for those with special needs. I testified before a state committee, appeared on television, picketed the state disability offices, provided help to families with Individual Education plans (IEPs), and formed a group that worked on helping those with disabilities be heard and get what they needed, and getting a special needs PTA up and running. We moved to Mississippi and 6 months later COVID started. I haven’t been involved with advocacy here at all. It wasn’t that there weren’t things that needed advocating for. It was more that with going back to school, working, and the shutdown of COVID I didn’t have the time or things were so influx due to COVID no one knew what was going on. No one knew how IDEA and FAPE applied in a COVID world.

Why did the advocacy mama bear awaken again?

Image by dianakuehn30010 from Pixabay

A school saying that despite my son finally passing pre-algebra after taking it 5 times, it will not count as a math credit. Because the class was not passed while my son was in 9th grade, they are saying that the state is it cannot count as a math credit. It will count instead as an elective credit. What this means is that my son is starting from scratch on his math credits and in his final semester of school he will have to take 2 math classes at once, and take a harder math class than he would need to graduate because he has no math credits currently. This is my child who has dyscalculia- a math disability.

Dear state legislatures and educators-

  • It shouldn’t matter which grade a child passes a math class as long as they pass it.
Calleen Petersen

Mississippi ranks at the bottom on many measures of education. Why are we making it harder for children to graduate for nonsensical reasons? Have you heard of IDEA? How about IEPs? Do you need a refresher course?

Image by Gerd Altmann from Pixabay

This is what it took to wake me up. In social work, advocacy is part of the job on a macro and micro level. I will not stop until this policy is changed, not just for my son, but for everyone else. And then I may turn my efforts to their “graduation track” policy that has been struck down in other states.

Mississippi, you don’t know what you just unleashed.

Medical Issues And Our Survival

Medical Issues And Our Survival

“Five years ago we moved from Alaska to Washington. Prior to doing so, our child, whose primary diagnosis is Autism, had spent time in a Children’s Psychiatric Hospital for 5 weeks.”
Read more. . .

Christmas In The Air? Time For A Tree?

Christmas In The Air? Time For A Tree?

My Christmas tree is never picture perfect. But then, I never want it to be. I don’t want a designer tree that sits there and screams perfection. Read more. . .

When God Opens a Door- Get Out Of The Way

When God Opens a Door- Get Out Of The Way

“For at the past two years I have been praying about our life in Washington State. It started when I learned that Washington state has a law that the age of consent for drug rehabilitation treatment and psychiatric treatment is 13. This means that at the age of 13, a child can get treatment without a parent’s knowledge. But it also means that they can refuse treatment that they need.” Read more. . .

Fireweed- At Last I Can Admire You

Fireweed- At Last I Can Admire You

It’s a flower I had never heard of until moving to Alaska. You can make yummy Fireweed Jelly with it. But what it’s most well known for in Alaska is a forecaster of winter coming. Read more…

My Journey With Anxiety

My Journey With Anxiety

“Not everyone is as lucky as I am and has their attacks manifest in all different ways. But know that this is a possibility. Things don’t always go by the book.” Read more…

The State of Long-Term Medical Care For Children in the U.S.

The State of Long-Term Medical Care For Children in the U.S.

“Where does that leave parents? Where does that leave vulnerable children? This needs to be part of the discussions being had about Medicaid. This needs to be part of the discussions that we as American’s have about helping our neighbors when they can’t do it alone. It shouldn’t be this hard to help a child. Especially when all the research shows that early intervention is the most successful.”

Pushing Acrophobia Boundaries 

While on a mini vacation this summer we visited Olympia National Forest and went up to Hurricane Ridge. It’s really high up and D has a HUGE fear of heights (Acrophobia). I have some sympathy as I am not hugely comfortable with them myself. We could have let him dictate where we go and what we did. It did to some degree as we didn’t make the 5-mile trek to the Dungeness Lighthouse that we wanted to see earlier in the day as he just can’t handle that much walking.
We have to find balance, so it was no to hiking and yes to pushing the fear of heights. We know that heights terrify him so we didn’t push him too much. From the moment he got out of the car he was hesitant to move anywhere but we wanted him to go into the Ranger Station with us. After touring the station I asked him to come outside for just a minute and take a look.img_2807He did it! This is after he took his look. He’s hugging the side of the building, but he did it!
If we let it, Autism, Acrophobia, and all his accompanying issues could completely control our lives. And to be honest, sometimes it does. But we will keep pushing the envelope, trying to make him feel more secure in a world that makes him feel anything but secure.