Dyscalculia

Advocacy Is Imperative for a Special Needs Parent

Advocacy Is Imperative for a Special Needs Parent

What does it take to awaken the advocacy mama bear in me?

When we lived in Alaska and Washington State, I spent a lot of time advocating for those with special needs. I testified before a state committee, appeared on television, picketed the state disability offices, provided help to families with Individual Education plans (IEPs), and formed a group that worked on helping those with disabilities be heard and get what they needed, and getting a special needs PTA up and running. We moved to Mississippi and 6 months later COVID started. I haven’t been involved with advocacy here at all. It wasn’t that there weren’t things that needed advocating for. It was more that with going back to school, working, and the shutdown of COVID I didn’t have the time or things were so influx due to COVID no one knew what was going on. No one knew how IDEA and FAPE applied in a COVID world.

Why did the advocacy mama bear awaken again?

Image by dianakuehn30010 from Pixabay

A school saying that despite my son finally passing pre-algebra after taking it 5 times, it will not count as a math credit. Because the class was not passed while my son was in 9th grade, they are saying that the state is it cannot count as a math credit. It will count instead as an elective credit. What this means is that my son is starting from scratch on his math credits and in his final semester of school he will have to take 2 math classes at once, and take a harder math class than he would need to graduate because he has no math credits currently. This is my child who has dyscalculia- a math disability.

Dear state legislatures and educators-

  • It shouldn’t matter which grade a child passes a math class as long as they pass it.
Calleen Petersen

Mississippi ranks at the bottom on many measures of education. Why are we making it harder for children to graduate for nonsensical reasons? Have you heard of IDEA? How about IEPs? Do you need a refresher course?

Image by Gerd Altmann from Pixabay

This is what it took to wake me up. In social work, advocacy is part of the job on a macro and micro level. I will not stop until this policy is changed, not just for my son, but for everyone else. And then I may turn my efforts to their “graduation track” policy that has been struck down in other states.

Mississippi, you don’t know what you just unleashed.

Dear Health Professionals

Dear Health Professionals

“As a parent with a special needs child, we are expected to have a medical degree, multiple therapy degrees, education degrees, degrees in nutrition, psychology and more. (I’ll be able to claim the psychology degree in a few months.) At least it seems that way when we take our child with Autism to the doctor or consult one.”
Read more. . .

Dear Medical Professionals

Dear Medical Professionals

“Yes, it’s almost like we are asking you to be God. But you don’t have all the answers, and can’t preform all the miracles.”
Read more. . .

The Push Towards Calculators in Special Education

The Push Towards Calculators in Special Education

“I’m seeing something in the education world I’m not really thrilled with. Maybe because it’s my favorite subject- math? 😉
Both of my children have struggled with math. It doesn’t surprise me at all. Their parents did, so it would be understandable that they would. But the reasons they have struggled are different.” Read more. . .

If We Didn’t Have To Move Mountains…

I’ve been thinking a bit lately about all the time and energy that Parents of Special Needs children expend. We can truly move mountains for our kids. Mountains of paperwork, mountains of professionals who don’t want to listen to us, mountains of physical and medical issues. But what if we didn’t have to and all our children’s needs were met and we could expend that energy and time elsewhere?
The parents I know would change the world. So much of our time is spent fighting to just exist. The schools, insurance companies, and doctors don’t see even a fraction of what we are capable of if it didn’t take everything that they had to make sure our child is fed, happy, and alive. (Believe me, they wouldn’t want to see us if we weren’t completely drained because they would lose every time.)
Personally, I have to parcel out my energy for fighting battles. I have to be in the right mood and my anxiety levels down so that I can wage war. Because it truly is like waging a war so much of the time.
Parents, Grandparents, and Caregivers give your self a pat on the back. You are SO capable the world wouldn’t know what to do if we weren’t so busy with everything else.

How To Let the New Teacher Know About Your Child

New school year, new teacher. Your child has an IEP but do all your child’s teachers know that? What about Music, Art, and Gym teachers? We are starting our Middle School adventures this year. How does that even work with him changing teachers all day?
You have this beautiful, wonderful child who can sometimes be misunderstood. How can you be proactive without becoming one of “those” Moms?

Something that I was introduced to last year was a child’s resume to introduce your child to the teacher. It has your child’s name and picture at the top. After that, you outline your child’s strengths and weaknesses. If your child gets upset easily or has certain triggers that will set him off- How do you de-escalate them? Special interests that will help them redirect them when they get upset or distracted.
This way it should cut down on misunderstandings, talks with the Teacher, or (gasp) Principal. Awareness of the issues as we know can make a world of a difference.

I’m here… To Blog

I’m here… To Blog

I’ve always loved to write but I haven’t done much of that in recent years and I think perhaps this will be good therapy for me. Perhaps along the way, I can encourage another Mom, Dad, Grandparent or Sibling out there to just try to live through today (or maybe the next 5 minutes) and not worry about tomorrow right now.
Read more. . .