Education

My Son’s Not Graduating This Year, Be Gentle

My Son’s Not Graduating This Year, Be Gentle

The journey of a special needs parent is both stunningly beautiful and utterly heartbreaking. Often with one coming closely on the heels of the other or at the same time.

I have made my peace that our parenting journey doesn’t look like everyone else’s.

Image by vined mind from Pixabay

But it doesn’t mean this year is an easy one.

Be gentle with me.

This year my son should be in his senior year of high school with senior pictures, parties, and all the fun senior things to look forward to. It should be a year of celebration.

But our year isn’t going to look like that. Be gentle with me.

Instead, he started 10th grade over again because he didn’t quite have enough credits last year completed to finish it. He was already behind, but he was one point away from being able to pass his Pre-Algebra class after taking the class for the 4th time. The good news is that we switched tutors to one who specializes in learning difficulties and after taking it for a 5th time, he passed with an A.

Image by Pexels from Pixabay

We tried to get him a summer job last summer to start edging him into the adult world. But that didn’t happen between state funding being cut so they couldn’t do the job placement program we had been working toward, and mom only having spare minutes here and there to help him learn how to fill out applications. He got a call back from one, but when he called them and spoke to them, they brushed him off.

I have learned that I need to work at his pace, and his pace isn’t being a graduating senior this year. The fact that he has made it this far despite literally sleeping through his entire middle school experience is honestly a miracle.

But it doesn’t mean that I won’t be grieving what could have been this year.

Be gentle with me.

When I see the senior pictures, when I see the graduation invitations, my heart is going to hurt. He won’t be leaving for college in the fall or getting his first apartment.

Be gentle with me.

I’ll be over here cheering him on. Cheering that he FINALLY passed his pre-algebra class. Cheering because he finally had a semester where he passed every single class! Cheering he made it to 11th grade mid-year. Cheering that if he continues he should (fingers crossed) graduate next year.

Image by Peter Timmerhues from Pixabay

Our journey isn’t the typical one, but it will make the celebration all the sweeter once it gets here.

*This previously appeared on Her View From Home.

Public Schools Think Parents Have Private School Money

Public Schools Think Parents Have Private School Money

Public schools think that parents have private school money.

I love what being on the dance team has taught my daughter. It has taught her to work hard and not give up even when it gets difficult. It is currently teaching her that you don’t have to like everyone but sometimes you do have to work with everyone for the benefit of the team. It has taught her confidence in herself and kept her in great shape. Those are valuable life lessons and that’s we’re here for. But something deeply concerns me about these school sports, marching bands, dance, and cheer teams and that is the amount of money it costs.

In many public schools, these activities are so expensive only families with two working parents with really good jobs can afford them.

When we went to the first meeting for the dance team, we were told that we needed to pay $1000 that month. No warnings, no payment plans. $1000 was due and if you couldn’t pay that, you were out of luck. We are in a situation where both my husband and I work, and while it was tight, it was something we could manage. Prior to me going back to work? We couldn’t have afforded it and our daughter would have had to drop out. Growing up, if I had wanted to do something like this? It would have been impossible. Our family never had that kind of disposable income.

Two cheerleaders mirroring each other with their hands in the air and one foot up.

This is a public school and in talking with other parents, these fees are not unusual. And it’s not just the dance team. I know a family who spent over $12,000 for their kids for band this year. Dance didn’t stop at the $1000 of course. It wasn’t unusual to have to pay $500 a month between the next round of uniforms, the next monthly coaching fees, and all the incidentals that kept coming up. Do we really need 3 sets of expensive practice uniforms? Then 2 sets of competition uniforms and a game day uniform, each set completed with their own $100+ pair of shoes and jewelry and hair bows?

The activities within public schools should be available to all. Band, football, cheer, and dance teams shouldn’t be exclusively available to those who can afford it. Not to the privileged few who are lucky enough to have come from families of economic means.

Blue background with orange overlay of a marching band cutout.

Fair play and opportunities for everyone have always been important to me. But then I started raising a child with special needs. A child who, if we did not demand that he be given the same opportunities as others, often wouldn’t be given them. This has made me look at situations and realize when we as a community, as a society are being unfair. Our 12 years of living off my husband’s income made me hyper-aware of the many times people just don’t have the money. Because we often didn’t have the money for things.

We as a society need to do better.

We need to invest in schools so that not only those who can afford tutors, extra training, and all the extras can participate and succeed. We also need to take a hard look at our programs and determine what is necessary to have a good program and what really isn’t so that everyone can participate.

A version of this first appeared on Her View From Home.

Advocacy Is Imperative for a Special Needs Parent

Advocacy Is Imperative for a Special Needs Parent

What does it take to awaken the advocacy mama bear in me?

When we lived in Alaska and Washington State, I spent a lot of time advocating for those with special needs. I testified before a state committee, appeared on television, picketed the state disability offices, provided help to families with Individual Education plans (IEPs), and formed a group that worked on helping those with disabilities be heard and get what they needed, and getting a special needs PTA up and running. We moved to Mississippi and 6 months later COVID started. I haven’t been involved with advocacy here at all. It wasn’t that there weren’t things that needed advocating for. It was more that with going back to school, working, and the shutdown of COVID I didn’t have the time or things were so influx due to COVID no one knew what was going on. No one knew how IDEA and FAPE applied in a COVID world.

Why did the advocacy mama bear awaken again?

Image by dianakuehn30010 from Pixabay

A school saying that despite my son finally passing pre-algebra after taking it 5 times, it will not count as a math credit. Because the class was not passed while my son was in 9th grade, they are saying that the state is it cannot count as a math credit. It will count instead as an elective credit. What this means is that my son is starting from scratch on his math credits and in his final semester of school he will have to take 2 math classes at once, and take a harder math class than he would need to graduate because he has no math credits currently. This is my child who has dyscalculia- a math disability.

Dear state legislatures and educators-

  • It shouldn’t matter which grade a child passes a math class as long as they pass it.
Calleen Petersen

Mississippi ranks at the bottom on many measures of education. Why are we making it harder for children to graduate for nonsensical reasons? Have you heard of IDEA? How about IEPs? Do you need a refresher course?

Image by Gerd Altmann from Pixabay

This is what it took to wake me up. In social work, advocacy is part of the job on a macro and micro level. I will not stop until this policy is changed, not just for my son, but for everyone else. And then I may turn my efforts to their “graduation track” policy that has been struck down in other states.

Mississippi, you don’t know what you just unleashed.

Be Brave, Give A Second Chance

“Sometimes, letting your guard back down and giving someone another chance is one of the best decisions you could make.”
Read more.

I Have A Dream

I Have A Dream

In 2018 I took hold of my dream of finishing school and becoming a therapist, despite my not being sure of being able to pull it off. In 2021 I graduated with my Bachelors in Psychology and started my Masters in Social Work. Now I’m currently working on my first of two internships.

As time as gone on and my knowledge has grown, this vision of becoming a mental health therapist, this dream, has continued to grow.

I have a dream of owning my own therapy practice.

But that is only the beginning. I dream of working with a psychiatrist who uses alternative forms of healing as well as psychiatric medication. I want a massage therapist and a acupuncturist on staff. I have found a huge benefit in those forms of treatment both in my physical and mental health and I believe they could be an important part of healing for many people.

I don’t want to be in a strip mall in a nondescript building. I want a small building in the middle of trees surrounded by a therapy garden. Somewhere where clients can go to heal and meditate and find peace. Where they can work in the ground and watch things grow. Where the things that grow there can feed their bodies and souls. A place where yoga classes can take place on a grassy knoll. A big gazebo where group therapy sessions can be held. To help support the garden, it could be a place for small baby showers, weddings, bridal showers, garden and book clubs when it isn’t in use by the clinic.

I want healing to happen. Strength and resilience to build. A place where everyone feels safe, welcome, and accepted.

It started with a small dream of becoming a therapist. And it keeps growing.

You Never Thought You’d Deal With Truancy

“Having a special needs child often means that our kids miss a lot of school. So to prevent entanglements with the truancy officer, learn from my experiences and make sure you get every single doctor’s note turned in.”
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A Legacy of Southern Manners or Something Else?

A Legacy of Southern Manners or Something Else?

“Years ago when we were trying to move out of Alaska, I half facetiously had my eye on The South. I had small children who were starting to learn what back talk is and experimenting with its use. Oh to be in The South where manners were taught, not just by me, but everyone they came in contact with!”
Read more…

God Knows I Have A Lot To Learn

God Knows I Have A Lot To Learn

“HR wasn’t anything I was looking to get into, and I definitely wasn’t looking at manufacturing for a job. But every job that would have been perfect for me, that I could bring a lot of skills and knowledge to the job, or that would help in my continuing education? None of them worked out.
Instead, God brought me into a factory.”
Read more…

Making Lemonade Out of Lemons

Making Lemonade Out of Lemons

My husband is away right now studying to become a EMT for his work. Something that normally takes 6 months to do, his job is squeezing it into 2 months. That’s a lot of medical info to learn in a short time.

The night before his first test we were on the phone and we did a couple of his practice tests together.

I discovered something.

I knew most of the answers or could reason them out. I’m pretty sure I could have passed his first test without studying at all.

Earlier in the week I was out to lunch with friends and one of the woman’s sons has recently had to have an ultrasound on his thyroid. Another woman’s child had to have X-rays on her torso. We were talking over their children’s results, and I was explaining some of the things.

I’m no doctor or nurse. I don’t begin to claim to give any medical recommendations. However after so many years, and hours upon hours in doctor’s offices, therapist’s offices, and testing facilities I’ve found I have picked up quite a bit.

If your child has to undergo X-rays weekly, then biweekly, and then monthly for an extended period of time, you’re going to start knowing what to look for. Because my son had had so many X-rays as a small child of his trunk with his gastro intestinal problems, I knew what I was looking at when we xrayed him to see how bad his scoliosis was recent. I didn’t know what the percentage of curvature was, but I knew where to look and what was what on the x-ray.

So I’m going to call all of this hard-won knowledge “lemonade”. All those lemons of medical issues for myself, and my family, has brought knowledge I can put to good use. Both for myself and others. I really believe that all knowledge gained can be put to good use.

Seriously? One Day I Won’t Be Fighting A School District?

Seriously? One Day I Won’t Be Fighting A School District?

“For many years moms of older boys with special needs have told me it would get better. That things were going to change.
Full confession?
I absolutely positively did not believe them. In fact, I thought they were crazy and delusional.”
Read more. . .