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My Son’s Not Graduating This Year, Be Gentle

The journey of a special needs parent is both stunningly beautiful and utterly heartbreaking. Often with one coming closely on the heels of the other or at the same time.

I have made my peace that our parenting journey doesn’t look like everyone else’s.

But it doesn’t mean this year is an easy one.

Be gentle with me.

This year my son should be in his senior year of high school with senior pictures, parties, and all the fun senior things to look forward to. It should be a year of celebration.

But our year isn’t going to look like that. Be gentle with me.

Instead, he started 10th grade over again because he didn’t quite have enough credits last year completed to finish it. He was already behind, but he was one point away from being able to pass his Pre-Algebra class after taking the class for the 4th time. The good news is that we switched tutors to one who specializes in learning difficulties and after taking it for a 5th time, he passed with an A.

We tried to get him a summer job last summer to start edging him into the adult world. But that didn’t happen between state funding being cut so they couldn’t do the job placement program we had been working toward, and mom only having spare minutes here and there to help him learn how to fill out applications. He got a call back from one, but when he called them and spoke to them, they brushed him off.

I have learned that I need to work at his pace, and his pace isn’t being a graduating senior this year. The fact that he has made it this far despite literally sleeping through his entire middle school experience is honestly a miracle.

But it doesn’t mean that I won’t be grieving what could have been this year.

Be gentle with me.

When I see the senior pictures, when I see the graduation invitations, my heart is going to hurt. He won’t be leaving for college in the fall or getting his first apartment.

Be gentle with me.

I’ll be over here cheering him on. Cheering that he FINALLY passed his pre-algebra class. Cheering because he finally had a semester where he passed every single class! Cheering he made it to 11th grade mid-year. Cheering that if he continues he should (fingers crossed) graduate next year.

Our journey isn’t the typical one, but it will make the celebration all the sweeter once it gets here.

*This previously appeared on Her View From Home.

Will It Be My Fault?

I sometimes think back to the early years of my kids lives. They were born in 2006 and 2007. Until 2015 I dealt with debilitating back pain. In 2013 I had my first back surgery which didn’t work. In 2015 I had my second surgery and almost 8 years later I’m still doing well.

But those early years meant a lot of mom laying on the couch or bed, trips to doctors, emergency rooms, and chiropractors. When we were preparing for my second surgery my daughter was terrified what would happen to her and her brother. She remembered that after the first surgery I couldn’t do much. Who was going to take care of them? Who was going to feed them?

As I remembered this today, it struck me that my husband and my roles are reversed now. He is frequently in hospital, or at doctors when I can drag him there (men!)., in bed and not feeling well. Now they worry about him.

Who is going to be there for them when he cannot?

Parents are central to a child’s survival and psyche. It is from them a lot of our self talk comes from. It is from them often we learn to rely a lot on others or be very independent.

I worry that because of all the physical pain I was dealing with, which in turn greatly affected my mental health, I was not enough. Add to that dealing with other people in the family’s mental health and the strain it put on me.

Did I raise children who will sit on a therapist’s couch one day because their mother ruined them? Because she wasn’t emotionally or physically available?

As they are teenagers now, I wonder through these years of their hating me one minute and breaking down to tell you they love you the next. Did I fill their needs? They were fed and clothed.

We Have Trauma Too

A friend’s child is in the hospital right now due to a heart condition. As I visited for a moment with her, I was brought back to all those times my child was in the hospital. How hard that is. There are so many maybes, and what if’s, and no guarantees. A mother’s worst nightmare.

This is a nightmare those of us in the special needs community are all too familiar with.

Mental health practitioners are recognizing more and more how medical trauma affects the children being treated. But what I don’t hear about is the vicarious medical trauma that parents suffer, and a light needs to be shown on it. Because it is real, and it is important.

An acquaintance recently posted about how she was having issues with her pregnancy and was being kept at the hospital for a while. But it was bringing back so many memories, triggering so much trauma from when her three year old was being treated for cancer and then later died.

In my work as a social work case manager, I remind parents daily about self care. I remind them how important it is to take care of themselves, I recommend that they seek therapy and healing.

So I’m going to remind you today too. The trauma you have experienced as you have shepherded your children through these illnesses and disabilities? It’s real. Don’t question it. Invest the time in yourself and your care. Seek out therapy, a listening year of a friend. Practice good self care. Your children depend on it.

But even more importantly, so do you.

I Have A Dream

In 2018 I took hold of my dream of finishing school and becoming a therapist, despite my not being sure of being able to pull it off. In 2021 I graduated with my Bachelors in Psychology and started my Masters in Social Work. Now I’m currently working on my first of two internships.

As time as gone on and my knowledge has grown, this vision of becoming a mental health therapist, this dream, has continued to grow.

I have a dream of owning my own therapy practice.

But that is only the beginning. I dream of working with a psychiatrist who uses alternative forms of healing as well as psychiatric medication. I want a massage therapist and a acupuncturist on staff. I have found a huge benefit in those forms of treatment both in my physical and mental health and I believe they could be an important part of healing for many people.

I don’t want to be in a strip mall in a nondescript building. I want a small building in the middle of trees surrounded by a therapy garden. Somewhere where clients can go to heal and meditate and find peace. Where they can work in the ground and watch things grow. Where the things that grow there can feed their bodies and souls. A place where yoga classes can take place on a grassy knoll. A big gazebo where group therapy sessions can be held. To help support the garden, it could be a place for small baby showers, weddings, bridal showers, garden and book clubs when it isn’t in use by the clinic.

I want healing to happen. Strength and resilience to build. A place where everyone feels safe, welcome, and accepted.

It started with a small dream of becoming a therapist. And it keeps growing.

Will My Kids Say I Was Enough?

“Did I fill their needs? They were fed and clothed.

Did they know they were loved? I tried to spend quality time with them.

Was it enough?”

Earthquake Preparedness: What You Need to Know

” It is just the three of us in the office in the quiet, cold, morning. I go back to my emails and a few moments later, there is a low rumble, I look up, thinking it must be one of facility’s trucks rumbling by. The sound increases. Suddenly there is a loud BOOM! as the ground begins to shake and roll. I am nauseous from the rolling of the ground as I stumble towards my door.”
Read more…

Judging A Right To Life or Death

“A couple of years ago, I took a college class entitled Death, Dying, and Bereavement. It was a fascinating class. We talked about different types of death, bereavement, and the act of dying. One of the topics covered was whether people should have the right to choose their death when they are terminally ill. I learned something really important from that class.”
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How I Made It Through the Past 15 Years?

Yesterday, I spoke via Zoom to students and medical professionals from the University of Tennessee. The topic was, “What is it like raising my child with special needs.“ This is something I volunteer for regularly because it is so important to me that these young medical professionals have a small understanding of what is going on in the lives of the patients and families they see.

One of the questions I was asked was, “What do I do to be able to make it through the really bad times.” I thought that this was a really good topic for discussion here. Because if you have a special needs child, you deal with some really heavy things. Things that if you begin explaining to people who don’t experience things similar, will start slowly backing away and have a look of a deer caught in the headlights.

Our lives are different.

But we can still find beauty, peace, hope, and love even in the midst of the heartache and storm.

So what do I do that helps get me through?

My number one reliance is on God. When I reach that point where I can’t carry on, he has ALWAYS been there for me. He carries me through in sweet and miraculous ways. Like the time he actually sent someone to clean my bathrooms. I’m not making this up. He sent someone to do my most despised chore of all when I was at the end of my rope.

Finding, and making sure that I have things that bring me joy in my life is another thing that I hold tightly to. Fresh baked anything will always put a smile on my face. A good book, or British TV show brings a sense of calm to my soul I really relish. Playing or singing music, working in my garden to grow things of use and beauty. It makes me feel like I’ve really accomplished something and my soul rejoices in the beauty of what I have done.

Hot, long baths. This is my staple. When my children were small my husband had a very unpredictable work schedule. We also had very little money. Things people would think of for self-care, like going and getting a massage, shopping, girl’s nights out and vacations were very rarely something I could pull off. When you have kids like ours, even if you do have the money, finding a babysitter can be extremely problematic. So as soon as my kids were safely asleep I would grab a book and take a steaming hot bath. Water cools down? No problem, just add more hot water. I’m not sure I could have made it through if it weren’t for those baths. I have been known on occasion to take 3 hour baths.

Another lifeline was finding other people who were experiencing similar things. Parents who also had special needs children who had their own brand of unusual. One mom I know wore a football helmet every time she got in the car to protect herself from things being thrown at her while driving. I’m sure there was more than one second glass as she drove the freeways to and from appointments. But this is the kind of different we live in. Knowing that there are people out there that get why we do what we do, and can even top our story? It’s a God send. These are your people and your kid’s people.

So if you are wondering, “How can I make it through another day of this?” Try a few of these out. They helped me a lot.

My Greatest Hope and My Greatest Fear

“Two and one half years.

That’s the amount of time I have left until my son turns 18. Every time I think about it, terror grips my heart.”

Holding a Job and Being a Parent of Special Needs Child is Often Incompatible

“The first story I’ll tell you is that of a single mom. She recently discovered that her daughter had serious medical issues. All of her sick leave and vacation now go to time off for medical appointments. She has enough for this year, but next year, she will likely burn through that quickly. Vacations will now be a thing of the past while she desperately tries to balance working, being a mom, and the care of her sick child. She is lucky. She has worked with the company she works for, for over a year and therefore is eligible for the government program of FMLA (Family Medical Leave Act). This act protects her job and ensures she gets time off- though unpaid, to care for her child.”
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