“What if this is the best he can do?”
This question haunts me. Read more. . .
“What if this is the best he can do?”
This question haunts me. Read more. . .
“When our son was almost 5, he suddenly would have days where he would sleep 20 hours in a day. I would wake him up and take him to Preschool for 2 hours, pick him up with a sippy cup of milk and something to eat and in the 10 minute drive home he would be asleep. He would sleep until about 5 be awake for 2 hours and be out for the night. He’d have 2 1/2 days of this and then his sleep would go back to normal for awhile and then we’d get another few days of sleepiness.”
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“The big push currently in the special needs world is to include the voices of adults or children in our discussions of treatment and taking their experiences under consideration. People who actually experience the issue weighing in on their treatment.
I think this is a good thing. Their voices NEED to be heard and they have been silenced for too long.
But. . .
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“They are told that in order to get the help their son needs they will have to give up custody to force their state into giving him care.
This is what they end up having to do. They have to legally “abandon” their child and Social services take over.”
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“Sometimes as parents, we need to get out of our children’s way. We need to let them step forward and fail spectacularly or nail it. Or land somewhere in between.”
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“Yes, it’s almost like we are asking you to be God. But you don’t have all the answers, and can’t preform all the miracles.”
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“I know we are not your ideal of a customer. You would rather not have us enrolled on your rolls.
Yours is a business that is for-profit. You want to make money. But despite our paying you hundreds of dollars every year, and then paying thousands of dollars out of pocket every year, our family puts you in the red every year.”
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“Just a piece of paper. It shouldn’t knock my anxiety levels out of the park. And yet it does.”
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“Am I to blame for my child’s diagnosis?”
This is the question parents with Special Needs ask themselves, pretty much without exception. There is A LOT of guilt that accompanies having a special needs child. I have seen it in both with Mothers and Fathers. At some point in our parenting journey, no matter the circumstances, we wonder or blame ourselves.
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When my son was first diagnosed with Autism, I visited the local Autism Society and brought home armloads of books. Then I returned again and got more stacks of books which I delved into. Autism, ADHD, Sensory Disorder, I tried to find out every single thing I could. It continued for a couple months. Autism wasn’t a diagnosis I was expecting nor was it one I knew a lot about. I burned out on all those books. Read more…