“As a parent with a special needs child, we are expected to have a medical degree, multiple therapy degrees, education degrees, degrees in nutrition, psychology and more. (I’ll be able to claim the psychology degree in a few months.) At least it seems that way when we take our child with Autism to the doctor or consult one.”
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“What if this is the best he can do?”
This question haunts me. Read more. . .
Wether your world is the special needs world or not, everyone’s experiences are valid. This is where they are coming from. It’s where you are coming from. If we listen we can find common ground to stand together on the important things and stop fighting. Because who has the strength and energy to fight?
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“The big push currently in the special needs world is to include the voices of adults or children in our discussions of treatment and taking their experiences under consideration. People who actually experience the issue weighing in on their treatment.
I think this is a good thing. Their voices NEED to be heard and they have been silenced for too long.
But. . .
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“I don’t have any magic advice. For those of you dealing with five. Just know that those of us at 13? We’re here for you. We’ll help you through.”
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If there is one thing I have found in this special needs parenting journey, is that no two parents will react to the news in the same way.”
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“Yes, it’s almost like we are asking you to be God. But you don’t have all the answers, and can’t preform all the miracles.”
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“I know we are not your ideal of a customer. You would rather not have us enrolled on your rolls.
Yours is a business that is for-profit. You want to make money. But despite our paying you hundreds of dollars every year, and then paying thousands of dollars out of pocket every year, our family puts you in the red every year.”
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“Just a piece of paper. It shouldn’t knock my anxiety levels out of the park. And yet it does.”
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“Be it because of health concerns, behavior issues or something else, our lives are different.
And that’s okay.”
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