“. . .there is one bright spot in this COVID world that should have all of us with special needs family members rejoicing.”
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Autism
Hear Me Scream! We Are Different Despite Our Diagnoses
“. . .when we are talking to people with disabilities, we need to understand that just because we know they have one diagnosis, it does not mean that you understand what their unique issues and experiences are.”
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When Your Child Has Too Many Diagnoses
“I was really hoping to able to get my son into special needs summer camps this year. Last year I enrolled him in some at the local community center, and things didn’t go well. So I’ve moved on to other camps that specialize in children with special needs. I was really excited as I found some really cool ones that bill themselves as camps for kids who can’t go to normal summer camps. They are staffed with medical professionals to deal with medical issues that could arise. I was SO excited to find them. One would even take my daughter too and my husband and I could have a mini-vacation!”
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Dear Health Professionals
“As a parent with a special needs child, we are expected to have a medical degree, multiple therapy degrees, education degrees, degrees in nutrition, psychology and more. (I’ll be able to claim the psychology degree in a few months.) At least it seems that way when we take our child with Autism to the doctor or consult one.”
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What if This is the Best He Can Do
“What if this is the best he can do?”
This question haunts me. Read more. . .
I Can’t Tell What You’re Saying
“Last week I was in Walmart with my son. As we waited in line to check out I was noticing the amount of people wearing facial masks and thinking, ”I really miss seeing people’s smiles, I can’t tell if how they are feeling with their face under a mask.”
And then it hit me.
This is how my son has viewed the world.”
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Your Experience is Different Than Mine
Wether your world is the special needs world or not, everyone’s experiences are valid. This is where they are coming from. It’s where you are coming from. If we listen we can find common ground to stand together on the important things and stop fighting. Because who has the strength and energy to fight?
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“Own Voices” vs Special Needs Parents
“The big push currently in the special needs world is to include the voices of adults or children in our discussions of treatment and taking their experiences under consideration. People who actually experience the issue weighing in on their treatment.
I think this is a good thing. Their voices NEED to be heard and they have been silenced for too long.
But. . .
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God Doesn’t Always Send Healing
“The lame walk, the blind saw. The leper was healed, and the dead lived again. The New Testament is full of Christ’s miracles of healing. We read of great faith of many with and without names that are given.
Something the Bible doesn’t say?
It doesn’t say that every single person with an ailment was healed in Judea. It doesn’t say that every single person who had faith to be healed was healed. “
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Our Changing World: Special Needs Children
“I don’t have any magic advice. For those of you dealing with five. Just know that those of us at 13? We’re here for you. We’ll help you through.”
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